I contemplated how to post or what to post. Contemplated what to say and what not to say. Something so amazing, yet I don’t even know how to share it. So I’ll put it simply…
I am “technically” in REMISSION!
I’ve had 6 months with stable platelets, 6 months with no medication, 6 months with no ER visits, 6 months of weekly blood tests and 6 months of constantly hoping!
My Doctor was quick to remind me that this never actually goes away in adults. It will come back, just a matter of when. I of course didn’t enjoy hearing that part BUT I’m going to focus on the here and now!
This past year has been a difficult one for me in many aspects. I’ve gone through some very personal struggles, very quietly on my own. I’d like to think the universe was giving my ITP a little break, so I could deal with all the other things I needed to in life. Thank you for that Universe! While I don’t have them all figured out, I’m one step closer every day.
Also worth mentioning, 2 days before I found out about my remission, I heard that a fellow ITP Warrior friend lost her battle and maybe that’s playing into why I don’t know how to celebrate right now. She was such a light in this dark disease. I’m so thankful to finally be in remission but it’s currently with a heavy heart.
Living with ITP has reminded me that life is truly a gift. Any given moment we can be gone. I’d like to think I’ve loved me a little more this past year. I’ve also loved on my tribe more too. Making time for the people who truly mean the world to me. I couldn’t do this battle alone and I’m lucky that I’ve never had to.
Sometimes I get in such a good groove with life and I forget that I even have a life threatening disease. Those are the best days. When I’m able to just ride the wave of life, enjoy the speed humps and not think twice about what’s going on around me. I try to do this more often than not.
So for now… for today and the days to come… I’ll try to celebrate. Celebrate where I’m at. Celebrate how far I’ve come. Celebrate how much I’ve grown. Celebrate who I’m becoming. Celebrate the friendships I’ve made. Celebrate this amazing, crazy, chaotic, beautiful life.
I’ve said it before and I’ll say it again, I have ITP…. It does not have me!
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